Everyday Road to Healthy

  • Home
  • Healthy Eating
    • Recipes
  • Health & Fitness
    • Goal Trackers
    • Our Cancer Stories
  • Self Care
  • Home Care
  • ERTH Finds
  • About Us
    • Contact Us
    • Copyright
    • Privacy Policy

October 12, 2011 ·

The Creating Hope Act

Self Care

Did you know that in the last 20 years only ONE drug has been initially approved by the FDA for any childhood cancer?  The only drugs available are “hand-me-down” drugs developed for adults.    Drugs that toxicity often leave children with a lifetime of challenges or impairments.  And did you know that 1/2 of all chemo-therapies used to treat children’s cancers are over 25 year old?

The  Creating Hope Act was introduced with bipartisan support into the House of Representatives and to the Senate in March of this year.  This Act will encourage pharmaceutical companies to develop new drugs for children who suffer from serious and rare medical conditions, by providing them a priority FDA review voucher for any other new drug.  In other words,  by developing new drugs for childhood cancer and other rare diseases, the pharmaceutical company is then able to more quickly get to market another drug that may be more profitable for them.

The Creating Hope Act is being championed by Nancy Goodman, Founder and Executive Director of Kids v Cancer.   Her son Jacob, was 8 years old when he was diagnosed with pediatric brain cancer.  Jacob passed away 23 months later at the age of 10.  In the last 30 years, no new drugs have been developed to treat Jacob’s form of pediatric brain cancer.

So what can we do?

We  advocate for passage of the Creating Hope Act.

How?

It’s easy.  Just click the following link to  contact your representatives and ask for their support of  The  Creating Hope Act.  The main note is already written for you, and the reps are pre-selected by your address.  Simply fill in your contact information, add a personal note if you like, and hit send.

  http://www.congressweb.com/cweb2/index.cfm/siteid/KAKI/action/TakeAction.Contact/lettergroupid/9

When you’re done share this page with others so they can do the same.  All it takes is a minute.

I sent it… Did you?

 

Update:  As of  10/13/11,  Forty three members of congress have signed on as Sponsors for the Creating Hope Act!!! Your emails are making a difference!!

 

Tweet
Share
Share
Pin
0 Shares

Don’t miss out!

Previous Post: « Meat Free Monday: Zucchini-Quinoa Lasagna
Next Post: Fashion Model for…oh about 10 minutes »

Footer

LET’S GET SOCIAL

  • Facebook
  • Instagram
  • Pinterest
  • Twitter

everydayroadtohealthy

☘️Happy St. Patrick’s Day! ☘️ I’m we ☘️Happy St. Patrick’s Day! ☘️ 

I’m wearing my green today and preparing to make some corned beef and cabbage for dinner, but what is this day about? Here are some fun facts:
☘️
What are we celebrating? St Patrick’s Day commemorates the patron saint of Ireland, a missionary who brought Christianity to Ireland. It is celebrated on March 17th, which is the day he is believed to have died.
☘️
Why shamrocks? St. Patrick used the 3-leaf shamrock to explain the Holy Trinity.
☘️
Why green? Green has tradition in Ireland but an old folklore states that wearing green makes you invisible to leprechauns. If they can see you, they will pinch you! 
☘️
Why corned beef and cabbage?  Well, corned beef and cabbage is NOT the traditional dish in Ireland! When Irish immigrants came to America, they couldn’t afford the more traditional pork and bacon, so they used the cheapest cut of meat they could find, beef brisket. So corned beef (not in any way related to corn but is a reference to the brine) and the inexpensive vegetable, cabbage, became the celebration dish of choice. (Side note, if you are Catholic and St. Patrick’s Day falls on a Friday during Lent, like today, diocese will usually issue a dispensation from abstinence, which means meat can be eaten today.  So queue the corned beef!).
☘️
#funfactfriday #stpatricksday
Because I love this quote so much, I had to upgrad Because I love this quote so much, I had to upgrade it from a story to a post. Michelle Yeoh, 60 years old, is the first Asian woman to win an Oscar for best actress for her performance in Everything Everywhere All at Once. 🏆What an inspiration! 💗 And not to be overshadowed, Jaime Lee Curtis won her first Oscar for a supporting role in the same movie. She is 64.

🌟It’s never too late!🌟

#ageisjustanumber #everythingeverywhereallatonce #michelleyeoh #jamieleecurtis #oscars #everydayroadtohealthy #healthyliving #healthylife #healthylifestyle #healthyeating #healthyhabits #selfcare #healthandwellness #healthandfitness #startwhereyouare #earthdayeveryday #healthyfood #fitness #fitnessjourney #healthjourney #fitnessmotivation #healthyrecipes #fitnessover40 #pushing50
Angela’s day in a reel - 1/21/2023 #dailyreel #e Angela’s day in a reel - 1/21/2023
#dailyreel #everydayroadtohealthy #butfirstcoffee #southblock #acaibowl #onelife #neopolitanpizza #boxerdog
Happy New Year! I’ve been a little absent becaus Happy New Year! I’ve been a little absent because I started the year off with a cold that left me tired and unmotivated. But I’m feeling better and starting my goal tracking a little late. I thought it would be helpful to combine all our goal trackers into one file for easy downloading and printing. The link to the all-in-one file can be found in our profile @everydayroadtohealthy ☝🏼. Swipe to see January printed at 75% and taped inside my planner. I’m hoping this works better for me this year!
💚 Start where you are. 🤎
.
#everydayroadtohealthy #healthyliving #healthylife #healthylifestyle #healthyeating #healthyhabits #selfcare #healthandwellness #healthandfitness #startwhereyouare #earthdayeveryday #healthyfood #fitness #fitnessjourney #healthjourney #fitnessmotivation #healthyrecipes #fitnessover40 #pushing50 #habittracker #goaltracker #2023goals
2022, you were filled with some great memories! I’m always sad to see another year go by. But I’m looking forward to making memories in 2023! 
.
#everydayroadtohealthy #healthyliving #healthylife #healthylifestyle #healthyeating #healthyhabits #selfcare #healthandwellness #healthandfitness #startwhereyouare #earthdayeveryday #healthyfood #fitness #fitnessjourney #healthjourney #fitnessmotivation #healthyrecipes #fitnessover40 #pushing50 #goodbye2022 #hello2023 #timeisathief #happynewyear #makingmemories
We hope everyone has a wonderful day filled with t We hope everyone has a wonderful day filled with the magic of the season! ❤️💚
I gave our protein balls recipe a little Christmas I gave our protein balls recipe a little Christmas upgrade. After refrigerating for a bit, dip in some melted chocolate and add some sprinkles! 😋 Search “protein balls” at everydayroadtohealthy.com for basic recipe, then add your own holiday upgrade!
.
#everydayroadtohealthy #healthyliving #healthylife #healthylifestyle #healthyeating #healthyhabits #selfcare #healthandwellness #healthandfitness #startwhereyouare #healthyfood #healthyrecipes #fitnessover40 #pushing50 #proteinballs #proteintreats #healthyholiday #healthyholidayrecipes #healthyholidaytreats
I’m sharing my tips and tricks for making the pe I’m sharing my tips and tricks for making the perfect jasmine rice 🍚 including what rice cooker I use, how much I make, and an age old method for measuring the water. Search “perfect jasmine rice” at www.everydayroadtohealthy.com for all the details!🍚
.
#everydayroadtohealthy #healthyliving #healthylife #healthylifestyle #healthyeating #healthyhabits #selfcare #healthandwellness #healthandfitness #startwhereyouare #earthdayeveryday #healthyfood #fitness #fitnessjourney #healthjourney #fitnessmotivation #healthyrecipes #rice #howtomakerice #ricecooker #perfectrice #jasminerice
If you’re looking for a way to volunteer this ho If you’re looking for a way to volunteer this holiday season - Wreaths Across America is this Saturday, Dec 17th. “In many homes there is an empty seat for one who is serving or one that made the ultimate sacrifice” this holiday season. Visit wreathsacrossamerica.org for more details on volunteering, donations, and locations near you.
Load More... Follow on Instagram